affects 1 in 9
of trans and non-
binary individuals
For each person living with endo, there’s a story.
Some chapters feel undeniably shared—and there’s true comfort in that.
But some passages are just yours. Experiences with endo that make you feel utterly alone.
The times when you can’t walk straight. Or think straight in the darkness of another migraine.
For you, it might be one of the cousins of endometriosis, adenomyosis or PCOS. But the commonalities and shared stories are what bring us together—which is exactly how Endometriosis WA began.
A Facebook group became a volunteer-driven not-for-profit organisation that opened the first bio-bank in Australia for endometriotic tissue.
Because here, we’re also writing the story of change. Advocacy aimed at unravelling the gaslighting, medicine focused on localised care, research that will lead to better diagnostic tools and treatments.
Our story is here in WA, with you, those who have endometriosis (or adenomyosis or PCOS) and your support people.
Awareness & Education
Awareness and education are the cornerstones of improving understanding and support from the wider community, and for empowering people affected by endometriosis to advocate for themselves.
Research & Engagement
We recognise the critical importance of research into the causes, early diagnosis, prevention, treatment, management and possible cure for endometriosis.
Peer
Support
EndometriosisWA is a 100% volunteer-run organisation. Our volunteers are all intimately aware of what it’s like to live with Endometriosis which we firmly believe helps us to better support and understand what you’re going through.
Endometriosis
Support Group
Support groups are a platform for social and emotional connection, encouragement and information exchange. Joining a support group often improves the quality of life and empowers those with endometriosis to make informed decisions about their health.
Endometriosis Western Australia WArriors is available 24-7 for those seeking a diagnosis or already diagnosed with endometriosis or adenomyosis.
We are a volunteer driven not-for-profit organisation supporting Western Australians affected by endometriosis.
Events
EndometriosisWA hosts bi-monthly events that are designed to be empowering, informative, and validating for individuals with endometriosis, helping them navigate their journey with greater resilience and knowledge.
Latest
News
Follow our blog for the latest news, announcements and stories.
How a Disease Affecting Millions is Still Being Ignored
I was ten years old when I first felt it – the kind of pain that makes you curl into yourself, wondering if this is what dying feels like.
EndometriosisWA Honours Scholarship
We are proud to announce the EndometriosisWA Honours Research Scholarship, which is dedicated to supporting and advancing research initiatives into how and why endometriosis occurs. This scholarship is specifically designed to assist Honours students undertaking...
Two students at the forefront of the battle to understand the ‘enigma’ of Endometriosis
Check out the latest ABC News article on endometriosis research in Western Australia. Written by Claire Moodie. Read Article Here