In 2013, there was no support group for those with endometriosis in the Perth metropolitan region. After many years feeling isolated and alone with endometriosis, and recognising an absence of social and cultural support, Joanne McCormick established an online support network to fill the void; Endometriosis Perth Sisterhood of Support (EPSS).
With momentum, in 2015, EPSS expanded reach to a wider community across Western Australia (to both online and offline members). We coordinated and facilitated regular face-to-face meetings, either educational, social or a mix of both to improve the wellbeing of our members and wider community. These events are free, run by dedicated volunteers with the occasional in-kind support of allied health professionals. Some examples of our presentations given at events can be accessed on our YouTube channel.
EPSS began advocating in 2016, raising the public awareness of endometriosis in Western Australia via marketing and social media campaigns. We have continued to be active, providing online peer support services and facilitating the successful running of six events per year. We continue to film our larger educational sessions to make the information readily accessible to those unable to attend.
In recognition of this work, were nominated as finalists in the global WEGO Health Awards for two consecutive years, as well as receiving ConnectGroups New & Emerging Support Group Award in 2017.
By late 2019 our team of volunteers grew to 12 and our Facebook group grew to over 2,000 members. As a result of these successes and recognising the need for increased services we incorporated as Endometriosis Western Australia in 2019 and have since achieved charitable status.
Today we proudly support our improved mission and purpose as Endometriosis Western Australia Incorporated.