Our Story
For each person living with endo, there’s a story.
Some chapters feel undeniably shared—and there’s true comfort in that.
But some passages are just yours. Experiences with endo that make you feel utterly alone.
The times when you can’t walk straight. Or think straight in the darkness of another migraine.
For you, it might be one of the cousins of endometriosis, adenomyosis or PCOS. But the commonalities and shared stories are what bring us together—which is exactly how Endometriosis WA began.
Because here, we’re also writing the story of change. Advocacy aimed at unravelling the gaslighting, medicine focused on localised care, research that will lead to better diagnostic tools and treatments.
Our story is here in WA, with you, those who have endometriosis (or adenomyosis or PCOS) and your support people.
Here at Endometriosis Western Australia we will always strive for bigger and bolder ventures to improve the lives of all Western Australians affected by endometriosis. If you’d like to learn more, or want to become a part of the EndometriosisWA story, please don’t hesitate to Contact Us
In 2013, we started as a grassroots support group in Perth to fill a glaring gap—there was no dedicated space for people with endometriosis to connect and be heard What began as the Endometriosis Perth Sisterhood of Support (EPSS) support group quickly grew. In 2021, we rebranded our support group to Endometriosis Western Australia WArriors—a name that better reflects the diversity in our member base and community.
In 2015, we began hosting free educational and social events across WA, driven by passionate volunteers and supported by generous health professionals.
A defining moment came in 2019, when we formally incorporated as Endometriosis Western Australia Incorporated, a pivotal step that solidified our foundation for long-term growth and allowed us to secure DGR endorsement and a charitable collections licence. This gave us the tools to scale up and dream bigger.
In 2022, we became a founding member of the Australian Coalition for Endometriosis, the peak consumer and advocacy body representing the needs of people with endometriosis in Australia.
In 2025, we launched our boldest initiative yet: the Support Telephone for Endometriosis & Pelvic Pain (STEPP) Program. This pilot initiative, funded by the Department of Communities, provides free, nurse-led support and evidence-based education to girls, women, and gender-diverse people newly diagnosed with endometriosis across Western Australia.
Let’s Make a Difference Together
Join us in making a lasting impact. Contact us today at info@endometriosiswa.org.au to explore partnership opportunities and help support those affected by endometriosis in Western Australia.
Our Partners & Sponsors
Each and every contribution helps us create a lasting impact in the lives of those affected by endometriosis in Western Australia. We are incredibly grateful to our generous partners for supporting our work in raising awareness, supporting local research, and expanding our existing initiatives.