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What they don't tell you....

Meet one of our younger support group members, Celestia 'Rose'. Endometriosis rendered her unable to attend school and only able to study from home between flares. Rose's symptoms started at around 11 years of age when she had a whole term off school with a “mystery stomach bug”. She completed all of Year 10 with SIDE. 

Rose missed 90% of Year 9 due to a combination of the schools reluctance to offer other alternatives for education, her symptoms and her family being completely overwhelmed by the enormity of it all. Ironically in year 9 Rose sat the pay to enter ICASS tests. She obtained a Distinction in English for Australia which placed her in the top 3% for year 9 in Australia. She also received a “Credit” in Science which placed her in the top 25 in Australia for year 9! 

Rose's sweet smile and charismatic personality have lit up the room at several of our support group events.  Today she shares what endometriosis is to her.

'Endometriosis is a condition where the cells similar to cells from lining of the uterus grow outside of the uterus and in other areas of the body, and can cause pain, nausea, vomiting, heavy bleeding, and diarrhoea.

What they don’t tell you is ...

That endometriosis is trips to emergency at 3 in the morning.

That endometriosis is the hospital staff not being able to do anything for you and sending you home crying in pain.