Naturopathy & Endometriosis February 2020 Event with Naturopath Samantha Smith

Non-surgical Treatments of Endometriosis October 2021 Event with Dr Bernadette McElhinney

Advocating for a Loved One August 2021 event with Maxine Drake, advocate

Endometriosis & Intimacy June 2021 event with Helena Green, Clinical Psychosexual Therapist, Couples Therapist, Clinical Sexologist & Counsellor

Accredited Practising Dietitian, Claudia Coombes presented the topic of Endometriosis, Diet and Nutrition at our April 2021 support group meeting.

Psychologist and clinical hypnotherapist, Rachelle Domansky presented the topic of Endometriosis and Mental Health at our February 2021 support group meeting. This workshop explores maximising mental well-being while coping with the myriad challenges of endometriosis. Learn about the effects of pain, stress, and fatigue on levels of anxiety and depression and how to combat these. Strategies for achieving and maintaining good mental health will be shared. With 30 years of experience in the Asia-Pacific region, Rachelle has worked in the fields of psychology and education within service providers, schools, universities, and private practice. She has an interest in women's health and pain management. With professional and personal experience in managing chronic health conditions, Rachelle is looking forward to engaging in support and information sharing for our group.

Special guest and experienced Advocate, Maxine Drake presented at our support group meeting on the topic of endometriosis and advocacy. Advocacy is the support of others in their negotiations for services or other entitlements. Maxine worked as a ‘health consumer advocate’ for 16 years and now uses the skills of advocacy in a wider range of areas, including schools and community. Maxine says, “sometimes fighting for yourself alone can just be too hard. Another person can tip the balance in power or confidence in new ideas”.

Dr Judith Thompson & Jo Morris are Pelvic Health Physiotherapists who specialise in treating conditions related to the pelvic area, like endometriosis. Judith and Jo discuss how physiotherapy can best help to manage symptoms often associated with endometriosis such as pelvic pain, pain with intercourse, changes in bladder and bowel habits, to help optimise quality of life. They also discuss common questions of endometriosis patients such as; “What exercise is recommended with endometriosis?”, “Why are my pelvic floor muscles important?” and “How can I self-manage my pelvic pain?”.

Recently, board member @Kiera Collier delivered a lecture at the University of Western Australia on Endometriosis. You may have noticed we’ve been sharing snippets from her lecture with you. Kiera completed a Bachelor of Biomedical Science, majoring in Medical Science at UWA last year, and will soon be studying a Master of Public Health and Graduate Diploma in Health Promotion. Kiera also suffers from endometriosis, as well as multiple other chronic conditions. These factors enabled Kiera to give a well-rounded lecture encompassing the biomedical, public health and factual information surrounding endometriosis, as well as an insight into the patient experience. Kiera volunteers with EPSS in her spare time, on our board, as part of the events team and Facebook moderation team. She was recently awarded the City of Canning Youth Citizen of the Year for her voluntary efforts. Kiera has a strong passion for endometriosis awareness and advocacy, public health and health care. Aside from that, Kiera loves to travel, paint and dance! In this snippet, Kiera explains how important support groups are in the management of chronic conditions and endometriosis. She discusses how EPSS has provided her with a sense of validation and connection, enabled her to make friendships with those in similar situations, helped her to stay motivated and shown her some tips and tricks for managing endo! Most importantly, Kiera says, “the acquisition of knowledge equals power, the power to make a change. If I hadn’t learned some of the things that I did from the group, I wouldn’t have had the power to stand up and make a change”.

In this video, Kiera discusses the cost of endometriosis in Australia. Endometriosis cost more than 7.4 billion in Australia (2017-2018). These costs were comprised of healthcare, absenteeism, lost social and economic participation and reduced quality of life. This is most likely an underestimate! Also, Kiera makes the point to think about what else endometriosis costs. She says:, “Don’t just think about economic costs! Does endometriosis cost friendships? relationships? opportunities?

In this video, Kiera gives an overview of the National Action Plan developed in 2018 by the Turnbull government, with contributions from many organisations and individuals. Overall, the goal of the National Action Plan is to create, ‘A tangible improvement in the quality of life for individuals living with endometriosis, including a reduction in the impact and burden of disease at individual and population levels.’

In this snippet, Kiera explains the Iceberg Model, that is used to demonstrate the invisible nature of many conditions. Kiera says, “Endo is often referred to as an invisible illness. If you see me walking around at university, at the grocery, even delivering this lecture, you cannot physically see the many symptoms I experience on a day to day basis.” Watch the video to hear her explanation! Kiera also explains how, despite the great progressions we have made as a society in women’s health care, stigma surrounding menstrual problems still exists, and can cause an array of issues for sufferers. A general societal normalisation of period pain is very common, which can be very damaging for those seeking a diagnosis.