Our Story
For each person living with endo, there’s a story.
Some chapters feel undeniably shared—and there’s true comfort in that.
But some passages are just yours. Experiences with endo that make you feel utterly alone.
The times when you can’t walk straight. Or think straight in the darkness of another migraine.
For you, it might be one of the cousins of endometriosis, adenomyosis or PCOS. But the commonalities and shared stories are what bring us together—which is exactly how Endometriosis WA began.
Because here, we’re also writing the story of change. Advocacy aimed at unravelling the gaslighting, medicine focused on localised care, research that will lead to better diagnostic tools and treatments.
Our story is here in WA, with you, those who have endometriosis (or adenomyosis or PCOS) and your support people.
Here at Endometriosis Western Australia we will always strive for bigger and bolder ventures to improve the lives of all Western Australians affected by endometriosis. If you’d like to learn more, or want to become a part of the EndometriosisWA story, please don’t hesitate to Contact Us
Endometriosis WA began in 2013 as a grassroots support group in Perth, created to fill a critical gap — there was no dedicated space for people with endometriosis to connect and be heard. What started as the Endometriosis Perth Sisterhood of Support (EPSS) quickly grew into a thriving community.
In 2015, we expanded our reach across Western Australia, delivering free educational and social events led by passionate volunteers and supported by healthcare professionals.
A defining milestone came in 2019, when we formally incorporated as Endometriosis Western Australia Incorporated. This enabled us to strengthen our governance, secure DGR endorsement and a charitable collections licence, and build a sustainable foundation for growth.
Since then, we have continued to evolve — rebranding in 2021 to better reflect our diverse and inclusive community, and becoming a founding member of the Australian Coalition for Endometriosis in 2022. We have also expanded our impact through the delivery of workplace education programs, supporting organisations to better understand and support employees living with endometriosis.
In 2025, we launched our most ambitious initiative yet: the Support Telephone for Endometriosis & Pelvic Pain (STEPP) Program. Funded by the Department of Communities, this free, nurse-led service provides evidence-based support and education to people newly diagnosed with endometriosis across Western Australia.
Let’s Make a Difference Together
Join us in making a lasting impact. Contact us today at info@endometriosiswa.org.au to explore partnership opportunities and help support those affected by endometriosis in Western Australia.
Our Partners & Sponsors
Each and every contribution helps us create a lasting impact in the lives of those affected by endometriosis in Western Australia. We are incredibly grateful to our generous partners for supporting our work in raising awareness, supporting local research, and expanding our existing initiatives.