Research Board
Deciding to participate in research is a personal choice that can be rewarding and contribute to the endometriosis community. The research notice board lists research projects looking for participants. All projects go through a review process and must provide evidence of approval by an institutional human research ethics committee. Please ensure you meet the requirements to participate and read all instructions carefully as these will change with each individual study.
For questions relating to an individual study, please contact the research group directly.
For general questions on research, please email research@endometriosiswa.org.au
EndoAccess: Gaining insights into patient experience in healthcare access and endometriosis diagnosis.
WHAT IS THE PROJECT ABOUT? In seeking a diagnosis of endometriosis you have gone through multiple interactions with the health system. This study...
Examining validating and invalidating healthcare experiences of adults with chronic pain
Many people with chronic pain report invalidation in healthcare settings. Invalidation occurs when their account of symptoms are not believed or...
Exploring young people’s and parents’ experiences of the help-seeking process in getting a diagnosis of endometriosis
Young people with endometriosis and their parents, we want to know what you think! https://bit.ly/qualtrics-endo-advisorygroup WE ARE LOOKING FOR:...
Share your Insights on Sport Participation in Young People with Chronic Health Conditions
We are conducting a research project exploring the experiences and perspectives of young people with chronic health conditions, their families, and...
Decisional conflict in individuals recently diagnosed with endometriosis
Have you Recently Been Diagnosed with Endometriosis? You are invited to participate in research by filling out an online survey. It should take no...
Experiences of Trans and Gender Diverse people in ART & fertility healthcare
LGBTIQA+ researchers are hoping to hear from a small number of people from trans and gender diverse communities about their experiences of fertility...
Using people’s strengths to reduce pain: Exploring peoples’ lived experiences with pain and recovery
Pain researchers at Curtin University are interviewing people who manage their pain well, or who have recovered from pain, to look into which...
ENDORIGINS
ENDORIGINS is a tissue biobank project formed through collaboration between researchers at the University of Western Australia and doctors at King Edward Memorial Hospital (KEMH) and is supported by the Fiona Wood Foundation and EndometriosisWA.
Over 5 years, the project will collect clinical data and samples from people having surgery for endometriosis at KEMH. The samples and data will be used in experiments to understand how and why endometriosis occurs leading to better diagnosis and treatments in the future.
Check out our ABC News article about the endometriosis biobank written by Claire Moodie.
